Septi\u0146us gadus R\u0113zekn\u0113 darbojas \u201cAutisma atbalsta punkts R\u0113zekn\u0113\u201d , kas apvieno \u0123imenes, kur\u0101s b\u0113rniem ir noteikta diagnoze \u2013 autisms. Biedr\u012bba raksta projektus, piesaista l\u012bdzek\u013cus, lai var\u0113tu re\u0123ion\u0101 organiz\u0113t nodarb\u012bbas b\u0113rniem, pieaicin\u0101t nepiecie\u0161amos speci\u0101listus un ar\u012b atbalst\u012bt vienam otru. <\/p>\n
Par to, k\u0101 veicas darbs \u201cAutisma atbalsta punkt\u0101 R\u0113zekn\u0113\u201d, ar k\u0101d\u0101m probl\u0113m\u0101m n\u0101kas saskarties un ko \u012bsti noz\u012bm\u0113 \u201cautisms\u201d, intervij\u0101 Latvijas Radio Latgales studijai st\u0101st\u012bja biedr\u012bbas valdes priek\u0161s\u0113d\u0113t\u0101ja Sandra Bi\u010dkova-\u0160ilina.<\/p>\n
J\u016bs kop\u0101 ar v\u012bru 2012. gad\u0101 dibin\u0101j\u0101t biedr\u012bbu \u201cAutisma atbalsta punkts R\u0113zekn\u0113\u201d. K\u0101d\u0113\u013c \u0161\u0101da biedr\u012bba bija nepiecie\u0161ama R\u0113zekn\u0113?<\/p>\n
Manam b\u0113rnam tr\u012bs gados tika uzst\u0101d\u012bta diagnoze – b\u0113rn\u012bbas autisms, l\u012bdz ar to nedz d\u0101rzi\u0146i, nedz Soci\u0101lais dienests, nedz izgl\u012bt\u012bbas p\u0101rvalde nesp\u0113ja pal\u012bdz\u0113t \u0161aj\u0101 jaut\u0101jum\u0101, jo par autismu praktiski zin\u0101\u0161anu taj\u0101 2012. gad\u0101 bija \u013coti, \u013coti maz. Tie\u0161i par autisko spektru.
\nL\u012bdz ar to mums \u012bsti nebija, kur likties, t\u0101p\u0113c vajadz\u0113ja kaut ko dar\u012bt, jo, kop\u0161 manam b\u0113rnam uzlika diagnozi, es divus gadus velt\u012bju tam, lai visp\u0101r saprastu, kas tas t\u0101ds autisms ir. K\u0101 pie t\u0101 pieiet, k\u0101 ar to visp\u0101r str\u0101d\u0101t. Es braucu uz semin\u0101riem uz R\u012bgu.<\/p>\n
Latvijas Autisma apvien\u012bba praktiski bija vien\u012bg\u0101 vieta, kur var\u0113ja uz to br\u012bdi kaut k\u0101du inform\u0101ciju ieg\u016bt.<\/p>\n
T\u0101s bija konsult\u0101cijas, semin\u0101ri, bet individu\u0101l\u0101 darba ar b\u0113rniem nebija. Iesp\u0113jams, kaut kur R\u012bg\u0101 bija, bet es nebiju uzg\u0101jusi. R\u012bga ar\u012b ir par t\u0101lu, t\u0101p\u0113c rad\u0101s nepiecie\u0161am\u012bba \u0161eit uz vietas str\u0101d\u0101t individu\u0101li ar katru b\u0113rni\u0146u. L\u012bdz ar to rad\u0101s nepiecie\u0161am\u012bba p\u0113c telp\u0101m R\u0113zekn\u0113 un ar\u012b p\u0113c individu\u0101l\u0101m nodarb\u012bb\u0101m.<\/p>\n
Kas notiek biedr\u012bb\u0101, k\u0101das aktivit\u0101tes, nodarb\u012bbas?<\/p>\n
M\u0113s piesaist\u0101m speci\u0101listus, k\u0101di mums ir vajadz\u012bgi \u2013 soci\u0101lais pedagogs, audiologop\u0113ds, fizioterapeits, masieris.<\/p>\n
Mums ir aktiermeistar\u012bbas pulci\u0146\u0161, pa\u0161aizsardz\u012bbas nodarb\u012bbas, sensor\u0101 istaba, m\u016bzikas terapija, logop\u0113ds, k\u0101 ar\u012b sadarb\u012bb\u0101 ar Sanktp\u0113terburgas doktr\u012bnas kl\u012bniku sniedzam ar\u012b bioakustisk\u0101s korekcijas (BAK) proced\u016bras.<\/p>\n
Ko noz\u012bm\u0113 autisma diagnoze?<\/p>\n
T\u0101 ir cit\u0101da dom\u0101\u0161ana un cit\u0101da uztvere mazliet. T\u0101s ir t\u0101 k\u0101 bailes no visa nezin\u0101m\u0101 \u2013 bailes no ielas, bailes no cilv\u0113kiem, bailes no su\u0146iem, bailes no balo\u017eiem.<\/p>\n
Piem\u0113ram, ja parastam b\u0113rnam \u0113\u0161ana un citi procesi notiek pa\u0161i par sevi, tad \u0161im b\u0113rnam viss ir j\u0101m\u0101ca, un tas ir j\u0101m\u0101ca visu m\u016b\u017eu. Soci\u0101l\u0101 komunik\u0101cija ir trauc\u0113ta.<\/p>\n
Vi\u0146\u0161 nesp\u0113j komunic\u0113t, k\u0101 m\u0113s ar jums \u2013 br\u012bvi un nepiespiesti. Vi\u0146\u0161 j\u0101sagatavo tam, un tas ir milz\u012bgs darbs gadu garum\u0101.<\/p>\n
Vai viegli ir atrast speci\u0101listus, kas var str\u0101d\u0101t ar \u0161\u0101diem b\u0113rniem?<\/p>\n
\u013boti gr\u016bti speci\u0101listus atrast. Vi\u0146us, pirmk\u0101rt, nekur neapm\u0101ca. Vien\u012bgais zinu, ka R\u012bg\u0101 plus m\u012bnus m\u0101ca speci\u0101listus, bet tas ir \u0161ausm\u012bgi d\u0101rgs process un ilglaic\u012bgs. Ne katrs vec\u0101ks var to at\u013cauties.<\/p>\n
Ne visi speci\u0101listi grib ar \u012bpa\u0161iem b\u0113rniem str\u0101d\u0101t. Tas ir \u013coti milz\u012bgs, smags darbs.<\/p>\n
Un es dom\u0101ju, ka vajadz\u0113tu s\u0101kt ar speci\u0101listu sagatavo\u0161anu \u0161iem b\u0113rniem. Tas speci\u0101lists, kur\u0161 var str\u0101d\u0101t, pie t\u0101 ir j\u0101gaida gara rinda, pie citiem \u2013 visp\u0101r nevar tikt. T\u0101da ir t\u0101 realit\u0101te ikdien\u0101. Ir \u013coti liela nepiecie\u0161am\u012bba p\u0113c speci\u0101listiem ar\u012b cit\u0101s pils\u0113t\u0101s, ne tikai R\u012bg\u0101.<\/p>\n
K\u0101 J\u016bs \u0161obr\u012bd v\u0113rt\u0113tu, vai b\u0113rni ar autismu var dz\u012bvot pilnv\u0113rt\u012bgu dz\u012bvi?<\/p>\n
\u0160aj\u0101 sist\u0113m\u0101, k\u0101da ir Latvij\u0101, \u2013 nevar. Un es dom\u0101ju, ka v\u0113l ilgus gadus nevar\u0113s. Trauc\u0113 nesak\u0101rtot\u0101 visa pal\u012bdz\u012bbas un atbalsta sist\u0113ma.<\/p>\n
J\u0101, ir deinstuticionaliz\u0101cijas process tagad, bet kur\u0161 ir \u012bstermi\u0146\u0101. Labi, b\u016bs t\u0101s grupu m\u0101jas vai dz\u012bvok\u013ci, bet cik ilgi? Finans\u0113jums k\u0101dreiz beidzas. Mums vajadz\u012bga pal\u012bdz\u012bba katru dienu.<\/p>\n
Izgl\u012bt\u012bbas sist\u0113ma, speci\u0101l\u0101 izgl\u012bt\u012bba ir novecojusi. Skol\u0101s nav speci\u0101lu izgl\u012bt\u012bbas programmu. Neviens nestr\u0101d\u0101 ar autiskiem b\u0113rniem. Izgl\u012bt\u012bbas programmu vi\u0146iem vienk\u0101r\u0161i nav. Vi\u0146i m\u0101c\u0101s vai nu visp\u0101rizgl\u012btojo\u0161\u0101s skol\u0101s, un iedod asistentu, vai ar\u012b speci\u0101laj\u0101s skol\u0101s, kur vi\u0146a intelekts tiek pazemin\u0101ts, jo vi\u0146\u0161 tiek ielikts pie gar\u012bgi atpaliku\u0161iem b\u0113rniem.<\/p>\n
Daudzi b\u0113rni ar autismu ir \u013coti intelektu\u0101li att\u012bst\u012bti. Un v\u0113l viena tendence \u2013 speci\u0101laj\u0101s skol\u0101s liek b\u0113rnus kop\u0101 ar da\u017e\u0101d\u0101m diagnoz\u0113m vien\u0101 klas\u0113. Tas nav norm\u0101li, t\u0101 nedr\u012bkst b\u016bt.<\/p>\n
Piem\u0113ram, gar\u012bga atpalic\u012bba, citam hiperaktivit\u0101te, citi ar fiziskiem trauc\u0113jumiem. Tom\u0113r b\u0113rniem, kuri ir intelektu\u0101li att\u012bst\u012bti, kuri var m\u0101c\u012bties, vajadz\u0113tu izdom\u0101t citu sist\u0113mu.<\/p>\n
Cik J\u016bsu biedr\u012bb\u0101 \u0161obr\u012bd ir biedru?<\/p>\n
Tr\u012bsdesmit divi, bet uz konsult\u0101cij\u0101m ir griezu\u0161ies – b\u016bs l\u012bdz simt cilv\u0113ki, jo novados visp\u0101r nav l\u012bdz\u012bgu biedr\u012bbu.<\/p>\n
Par pal\u012bdz\u012bbu no valsts. No 1. j\u016blija ir palielin\u0101ts pabalsts par simt eiro, \u0161obr\u012bd tas sasniedz 313 eiro. Vai tagad j\u016bs varat teikt, ka \u0161is pabalsts ir j\u016btam\u0101ks atbalsts?<\/p>\n
Pirmk\u0101rt, v\u0113l vi\u0146\u0161 nav sa\u0146emts, m\u0113s v\u0113l gaid\u0101m vi\u0146u. Nu, ko tie simt eiro… Es, piem\u0113ram, par \u0101rstniec\u012bbu grib\u0113tu pateikt. Es b\u016btu gatava maks\u0101t tos simtus eiro, ja es zin\u0101tu, ka manam b\u0113rnam ir norm\u0101la vesel\u012bbas apskate. Autiskiem b\u0113rniem ir lielas vesel\u012bbas probl\u0113mas, kuras iet l\u012bdzi plus\u0101 v\u0113l vi\u0146a diagnozei. Tikl\u012bdz tu pasaki diagnozi, t\u0101 \u0101rsti s\u016bta viens pie otra, un s\u0101kas ri\u0146\u0137a dancis.<\/p>\n
Es grib\u0113tu, lai medic\u012bnas sist\u0113m\u0101 b\u016btu izveidota t\u0101da sist\u0113ma \u2013 kad uzliek diagnozi, lai var sa\u0146emt individu\u0101lu rehabilit\u0101cijas pl\u0101nu, tie\u0161i manam b\u0113rnam piem\u0113rotu, kur\u0101 b\u016btu uzrakst\u012bts, kas man j\u0101dara, pie k\u0101diem speci\u0101listiem man j\u0101grie\u017eas. K\u0101d\u0101 skol\u0101 man j\u0101iet un ko skola var pied\u0101v\u0101t. Un, ja visi speci\u0101listi sadarbotos gan vesel\u012bbas sektor\u0101, gan soci\u0101laj\u0101, tad vec\u0101kiem neb\u016btu tik daudz probl\u0113mu.<\/p>","protected":false},"excerpt":{"rendered":"
Septi\u0146us gadus R\u0113zekn\u0113 darbojas \u201cAutisma atbalsta punkts R\u0113zekn\u0113\u201d , kas apvieno \u0123imenes, kur\u0101s b\u0113rniem ir noteikta diagnoze \u2013 autisms. Biedr\u012bba raksta projektus, piesaista l\u012bdzek\u013cus, lai var\u0113tu re\u0123ion\u0101 organiz\u0113t nodarb\u012bbas b\u0113rniem, pieaicin\u0101t nepiecie\u0161amos speci\u0101listus un ar\u012b atbalst\u012bt vienam otru. Par to, k\u0101 veicas darbs \u201cAutisma atbalsta punkt\u0101 R\u0113zekn\u0113\u201d, ar k\u0101d\u0101m probl\u0113m\u0101m n\u0101kas saskarties un ko \u012bsti […]<\/p>\n","protected":false},"author":1,"featured_media":41830,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0},"categories":[1],"tags":[],"_links":{"self":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts\/70451"}],"collection":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/comments?post=70451"}],"version-history":[{"count":3,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts\/70451\/revisions"}],"predecessor-version":[{"id":70460,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts\/70451\/revisions\/70460"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/media\/41830"}],"wp:attachment":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/media?parent=70451"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/categories?post=70451"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/tags?post=70451"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}