Cilv\u0113ki nesaprot, kas ir autisms.
\n\u201cLatvijas lepnuma\u201d st\u0101sts par Sandru, Edgaru un Markusu, ar kuru viss s\u0101k\u0101s
\nJau sept\u012bto gadu darbojas biedr\u012bba \u201cAutisma atbalsta punkts R\u0113zekn\u0113\u201d. To izveidoju\u0161i Edgars \u0160ilins un Sandra Bi\u010dkova-\u0160ilina. Vi\u0146i abi pieteikti \u201cLatvijas lepnuma\u201d balvai \u2013 par to, ka biedr\u012bba pal\u012bdz\u0113jusi tik daudz\u0101m \u0123imen\u0113m, kur\u0101s ir b\u0113rni ar autisk\u0101 spektra trauc\u0113jumiem.
\nSt\u0101sts s\u0101kas ar Markusu \u2013 Sandras un Edgara d\u0113lu. Kad tiekamies, Sandra vai ik p\u0113c mirk\u013ca atvainojas par vi\u0146a uzved\u012bbu: puisis nemaz nesl\u0113pj, ka vi\u0146am nepat\u012bk fotograf\u0113\u0161an\u0101s, un pavisam atkl\u0101ti pazi\u0146o, ka vislabpr\u0101t\u0101k t\u016bl\u012bt pat ietu prom. Vi\u0146am \u0161\u0101da situ\u0101cija \u2013 satik\u0161an\u0101s ar sve\u0161iem cilv\u0113kiem, intervija un fotograf\u0113\u0161an\u0101s \u2013 ir neierasta, liek justies ne\u0113rti.
\n\u201cCilv\u0113ki bie\u017ei vien dom\u0101, ka vi\u0146\u0161 ir neaudzin\u0101ts, izlaists,\u201d saka Sandra. \u201cNesaprot, ka tas ir autisms.\u201d
\nMarkuss ir iemesls, k\u0101p\u0113c rad\u0101s biedr\u012bba: kad vi\u0146am noteica diagnozi, vec\u0101ki mekl\u0113ja pal\u012bdz\u012bbu, lai d\u0113ls var\u0113tu att\u012bst\u012bties, iek\u013cauties sabiedr\u012bb\u0101. \u201cGrib\u0113j\u0101m atrast k\u0101dus speci\u0101listus, bet konstat\u0113j\u0101m, ka visp\u0101r nek\u0101 nav \u2013 piln\u012bgs tuk\u0161ums,\u201d saka Edgars.
\n\u201cT\u0101 rad\u0101s doma izveidot biedr\u012bbu, lai var\u0113tu uzaicin\u0101t ekspertus uz konsult\u0101cij\u0101m. Bija skaidrs, ka viena b\u0113rna d\u0113\u013c uz \u0161ejieni neviens nebrauks, bet ja ir, piem\u0113ram, desmit b\u0113rnu, speci\u0101lists var atbraukt uz veselu darba dienu.\u201d
\nKad jaut\u0101ju, cik liela biedr\u012bba izaugusi pa \u0161o laiku, Edgars atver kladi, kur uzskait\u012btas visas nodarb\u012bbas, apmekl\u0113jumi un speci\u0101listi. Pal\u012bdz\u0113ts vair\u0101k nek\u0101 40 \u0123imen\u0113m, kaut uz vienu konsult\u0101ciju ieradu\u0161ies gandr\u012bz 100 b\u0113rnu.
\nGrib\u0113t\u0101ju b\u016btu v\u0113l vair\u0101k, ta\u010du biedr\u012bba v\u0113las saglab\u0101t savu kvalit\u0101tes standartu \u2013 tikai individu\u0101las nodarb\u012bbas.
\n\u201cPiem\u0113ram, \u0161odien atn\u0101ks speci\u0101l\u0101 pedago\u0123e. Vi\u0146a katram b\u0113rnam velt\u012bs pusstundu no \u010detriem p\u0113cpusdien\u0101 l\u012bdz devi\u0146iem vakar\u0101. Pag\u016bs pastr\u0101d\u0101t ar devi\u0146iem b\u0113rniem. N\u0101kamie devi\u0146i var\u0113s tikt tikai n\u0101kamned\u0113\u013c,\u201d kalkul\u0113 Edgars.
\nDa\u017e\u0101di speci\u0101listi, kuru pal\u012bdz\u012bba nepiecie\u0161ama b\u0113rniem ar autismu, ir milzu retums un l\u012bdz ar to \u013coti piepras\u012bti, piem\u0113ram, ergoterapeite uz konsult\u0101cij\u0101m brauc no L\u012bv\u0101niem, audiologop\u0113de \u2013 no Vaivariem. Nodro\u0161in\u0101t \u0161o pakalpojumu katru dienu nav iesp\u0113jams.
\n\u201cEsam sasniegu\u0161i savas iesp\u0113ju robe\u017eas. Pat p\u0101rsniegu\u0161i t\u0101s,\u201d l\u0113\u0161 Edgars. L\u012bdz ar to nav j\u0113gas uz\u0146emt simtiem biedru un neko vi\u0146iem nesp\u0113t dot, paskaidro biedr\u012bbas izveidot\u0101js.
\nTom\u0113r bez biedr\u012bbas ar\u012b nevar \u2013 valsts atbalsts \u0123imen\u0113m, kur\u0101s ir b\u0113rni ar autisk\u0101 spektra trauc\u0113jumiem, nav pietiekams. To vienbals\u012bgi kritiz\u0113 gan Sandra, gan Edgars: nodarb\u012bbu skaits ir nepietiekams, individu\u0101lie att\u012bst\u012bbas pl\u0101ni \u2013 form\u0101li.
\n\u201cVisiem b\u0113rniem noz\u012bm\u0113 ergoterapeitus, kanisterapiju, delf\u012bnterapiju un ko tik v\u0113l ne, bet realit\u0101t\u0113 \u0161ie terapeiti ir gr\u016bti sasniedzami vai visp\u0101r nesasniedzami,\u201d saka Edgars.
\n\u201cAr\u012b \u0101rstniec\u012bba m\u016bs uztrauc,\u201d piebilst Sandra. \u201cAutistiem ir ar\u012b vesel\u012bbas probl\u0113mas. Vajadz\u0113tu piesaist\u012bt \u0101rstu komisijas, izstr\u0101d\u0101t individu\u0101lus rehabilit\u0101cijas pl\u0101nus. Tad ar\u012b skolas var\u0113tu lab\u0101k sagatavoties \u0161\u0101du b\u0113rnu uz\u0146em\u0161anai.\u201d V\u0113lamais tikai retos gad\u012bjumos sakr\u012bt ar eso\u0161o.
\nUz kl\u012bniku Krievij\u0101
\n\u201cAutisma atbalsta punkts R\u0113zekn\u0113\u201d pieaicina ne tikai viet\u0113jos, bet ar\u012b \u0101rvalstu speci\u0101listus. Laba sadarb\u012bba izveidojusies ar kl\u012bniku \u201cPrognozMed\u201d Sanktp\u0113terburg\u0101, no kuras uz Latviju regul\u0101ri brauc \u0101rsts Aleksandrs Munkujevs.
\nPie vi\u0146a b\u0113rnus ved vai no visas Latvijas un pat no kaimi\u0146valst\u012bm. Vi\u0146\u0161 izmekl\u0113 mazos pacientus un nosaka, kuriem b\u016btu lietder\u012bgi veikt \u012bpa\u0161u, divas ned\u0113\u013cas garu proced\u016bru un terapijas kursu uz vietas Sanktp\u0113terburg\u0101.
\n\u201cT\u0101 ir cita dimensija: b\u0113rns ieiet \u0161aj\u0101 kl\u012bnik\u0101 desmitos no r\u012bta un tikai vakar\u0101 izn\u0101k lauk\u0101,\u201d st\u0101sta Edgars. \u201cTur ir sports, mas\u0101\u017eas, specifisk\u0101s proced\u016bras \u2013 bioakustisk\u0101 korekcija, logoritmija, bungu terapija\u2026 Un t\u0101 katru dienu. Atbraucot b\u0113rns ir uzl\u0101d\u0113jies, zin\u0101tk\u0101rs, atv\u0113rts, gatavs m\u0101c\u012bties jaunas iema\u0146as, uztvert inform\u0101ciju.\u201d
\nTurpm\u0101kais atkar\u012bgs no vec\u0101kiem, vi\u0146u gatav\u012bbas un iesp\u0113j\u0101m turpin\u0101t ieguld\u012bt atvases att\u012bst\u012bb\u0101. \u201cNe visi to saprot,\u201d atz\u012bst Edgars. \u201cBija t\u0101ds gad\u012bjums, ka atbrauca b\u0113rns no kl\u012bnikas \u2013 sastimul\u0113ts, atv\u0113rts. Vec\u0101ki priec\u0101j\u0101s \u2013 agr\u0101k nerun\u0101ja, bet tagad to sp\u0113j, uztver visu, ko saka, saprot un dara! Un aizs\u016bt\u012bja uz intern\u0101tskolu. P\u0113c ned\u0113\u013cas bija regress, jo skol\u0101 nav individu\u0101las pieejas.\u201d
\nCiti st\u0101sti ir veiksm\u012bgi, piem\u0113ram, \u0123imen\u0113, kur\u0101 autisms konstat\u0113ts dv\u012b\u0146u m\u0101s\u0101m, ab\u0101m meiten\u0113m uzreiz p\u0113c \u0101rst\u0113\u0161an\u0101s kl\u012bnik\u0101 nodro\u0161in\u0101ts asistents, kas pal\u012bdz ikdienas gait\u0101s. Nu jau meitenes sp\u0113j iztikt bez asistenta, pa\u0161as n\u0101k uz nodarb\u012bb\u0101m, ko pied\u0101v\u0101 biedr\u012bba.
\nNo vienas puses, sadarb\u012bba ar Sanktp\u0113terburgas kl\u012bniku biedr\u012bbai un daudz\u0101m Latvijas \u0123imen\u0113m ir liels ieguvums: p\u0113c terapijas kaimi\u0146valst\u012b daudziem b\u0113rniem att\u012bst\u012bb\u0101 nov\u0113ro lielu l\u0113cienu.
\nNo otras puses, izv\u0113l\u0113tais virziens liedzis sa\u0146emt Latvij\u0101 liel\u0101k\u0101s labdar\u012bbas organiz\u0101cijas \u201cZiedot.lv\u201d atbalstu, kas, iesp\u0113jams, \u0113rt\u0101ku un \u0101tr\u0101ku padar\u012btu ziedojumu v\u0101k\u0161anu (visi braucieni un speci\u0101listu konsult\u0101cijas notiek, pateicoties labdaru atbalstam), jo kl\u012bnik\u0101 izmantot\u0101s eksperiment\u0101l\u0101s terapijas metodes Eirop\u0101 nav ofici\u0101li atz\u012btas un ar\u012b lielais austrumu kaimi\u0146\u0161 nav v\u0113lams sadarb\u012bbas partneris.
\nEdgars \u0160ilins tom\u0113r uzskata \u2013 jau Markusa att\u012bst\u012bba vien ir apliecin\u0101jums, ka \u0161is ce\u013c\u0161 ir bijis pareizs: savulaik puika nerun\u0101ja un bija ier\u0101vies sev\u012b, ja kaut kas nepatika, kliedza. Tagad prot run\u0101t pat angliski! \u201cCiti vec\u0101ki skat\u0101s uz Markusu \u2013 tas dod cer\u012bbas, ka ar\u012b vi\u0146u b\u0113rniem var\u0113tu b\u016bt l\u012bdz\u012bgs progress,\u201d saka Sandra. Vi\u0146ai ir milzu nopelni d\u0113la izaugsm\u0113, vi\u0146a vajadz\u012bb\u0101m Sandra pak\u0101rtojusi visu savu dz\u012bvi \u2013 ir vi\u0146a pavadone un atbalsts ik uz so\u013ca.
\nAutisma atbalsta punkt\u0101 pal\u012bdz\u012bbu var sa\u0146emt ar\u012b vec\u0101ki \u2013 kaut vai vienk\u0101r\u0161i izrun\u0101ties, tikt uzklaus\u012bti. \u201cJa b\u0113rnam konstat\u0113ts autisms, daudzu t\u0113ti un mammas apj\u016bk, ir izmisu\u0161i, nezina, ko ies\u0101kt,\u201d saka San\u00acdra. \u201cMums jau ir pieredze. Varam paskaidrot, nomierin\u0101t, iedro\u0161in\u0101t.\u201d
\nTehnolo\u0123ijas att\u012bst\u012bbai
\nBiedr\u012bbas \u201cAutisma atbalsta punkts R\u0113zekn\u0113\u201d b\u0113rniem ir iesp\u0113ja apmekl\u0113t ar\u012b multisensoro istabu R\u0113zeknes Tehnolo\u0123iju akad\u0113mij\u0101. \u0160aj\u0101 pasaku pasaulei l\u012bdz\u012bgaj\u0101 telp\u0101 b\u0113rns var atrast sev piem\u0113rot\u0101ko un t\u012bkam\u0101ko vietu un relaks\u0113ties vai, tie\u0161i otr\u0101di, akt\u012bvi darboties.
\nTom\u0113r t\u0101 nav tikai pat\u012bkama laika pavad\u012b\u0161ana, tas ir terapijas veids, paskaidro akad\u0113mijas vado\u0161ais p\u0113tnieks Aivars Kaupu\u017es: b\u0113rnus, kuriem nepiecie\u0161ama stimul\u0101cija, \u0161aj\u0101 telp\u0101 iesp\u0113jams rosin\u0101t uz akt\u012bv\u0101ku darb\u012bbu, bet tos, kuriem j\u0101nomierin\u0101s, iesp\u0113jams m\u0113r\u0137tiec\u012bgi atsl\u0101bin\u0101t un relaks\u0113t.
\nBiedr\u012bba sp\u0113rusi v\u0113l vienu soli t\u0101l\u0101k un, kaut nedaudz risinot speci\u0101listu tr\u016bkumu, aizs\u016bt\u012bjusi Aivaru Kaupu\u017eu uz apm\u0101c\u012bbu kl\u012bnik\u0101 Sanktp\u0113terburg\u0101. Tur vi\u0146\u0161 apguvis patent\u0113tu metodi, kas \u013cauj labv\u0113l\u012bgi stimul\u0113t autisko b\u0113rnu smadze\u0146u darb\u012bbu, izmantojot \u012bpa\u0161u programmu un raidot noteiktus ska\u0146u impulsus.
\nEdgars \u0160ilins past\u0101sta, ka \u0161\u0101di apm\u0101c\u012bt iecer\u0113ts v\u0113l vienu speci\u0101listu. Kas zina, varb\u016bt tas ir solis pret\u012b pa\u0161iem savas kl\u012bnikas izveid\u0113. Kaut ar\u012b \u0160ilini par \u0161\u0101diem pl\u0101niem ska\u013ci nerun\u0101, vi\u0146u pieredze un zin\u0101\u0161anas, k\u0101 ar\u012b ak\u016bt\u0101 nepiecie\u0161am\u012bba p\u0113c specializ\u0113tas pal\u012bdz\u012bbas b\u0113rniem ar autisk\u0101 spektra trauc\u0113jumiem liecina \u2013 \u0161\u0101dam centram apmekl\u0113t\u0101ju netr\u016bktu.<\/p>\n
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Cilv\u0113ki nesaprot, kas ir autisms. \u201cLatvijas lepnuma\u201d st\u0101sts par Sandru, Edgaru un Markusu, ar kuru viss s\u0101k\u0101s Jau sept\u012bto gadu darbojas biedr\u012bba \u201cAutisma atbalsta punkts R\u0113zekn\u0113\u201d. To izveidoju\u0161i Edgars \u0160ilins un Sandra Bi\u010dkova-\u0160ilina. Vi\u0146i abi pieteikti \u201cLatvijas lepnuma\u201d balvai \u2013 par to, ka biedr\u012bba pal\u012bdz\u0113jusi tik daudz\u0101m \u0123imen\u0113m, kur\u0101s ir b\u0113rni ar autisk\u0101 spektra trauc\u0113jumiem. […]<\/p>\n","protected":false},"author":1,"featured_media":88817,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0},"categories":[1],"tags":[],"_links":{"self":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts\/88816"}],"collection":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/comments?post=88816"}],"version-history":[{"count":1,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts\/88816\/revisions"}],"predecessor-version":[{"id":88818,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/posts\/88816\/revisions\/88818"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/media\/88817"}],"wp:attachment":[{"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/media?parent=88816"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/categories?post=88816"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.autismapunktsrezekne.lv\/lv\/wp-json\/wp\/v2\/tags?post=88816"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}